Getting it Right: User experience of online informed consent
Do you want to collect and store personally identifiable information (PII) such as name, date of birth, email from your beneficiaries? Do you need to obtain informed consent doing so but don’t want to inundate your users with paperwork?
In this session, we share our experience of ethically collecting and securing personal health information from over 150,000 individuals using intuitive and beautifully designed user experience guiding users through complex paperwork.
SPARK administers collect several complex consent forms including data consent, implied consent to receive reports, opt out consents for emails, and permissions to record sensitive phone conversations. This complex consenting process has to serve the 75% of participants who use mobile devices and 25% who use laptops and computers to participate. Finally, we empower our participants to be in control by providing easy access to their data and signed consents and the ability to withdraw their data any time.
- Understand different types of consents, explicit, implicit, opt-out, and permissions, and how we use them in online data collection
- Learn from our user-experience/ user-burden evaluation process while collecting mobile and web consents
- Learn how we put the users in control of their data and participation after they said yes